The second annual Brave Little Brielle Run for I-Cell Disease takes place Nov. 18 at Copper Sky. I-Cell is a rare disease with no known cure.
Children affected by the disease typically have a life span of three to five years. Brielle’s mother, Kimberly Galache, said her daughter’s case is the only one recorded in Arizona.
“Brielle will be turning 5 years old on Nov. 12, so it’s too late for her to find a cure or treatment because they are barely getting funds and there is barely research for this disease, but we are getting closer to getting some answers,” Galache said.
Brielle’s event last year raised $4,000 for the Yash Gandhi Foundation for I-Cell research. This year, her family hopes to raise even more.
“The families are the only ones that bring the research money because it is not government funded,” Galache said. “For me that’s a big responsibility, as a mom and as an advocate, to put it out there and make sure I bring awareness.”
Registration for children is $10; adults are $20. Registration begins at 10 a.m.
Registration info at “2nd Annual Brave Little Brielle Run for I-Cell Disease” event page on Facebook.
This story appears in the November issue of InMaricopa.